Wednesday, June 3, 2009

i'm facing the truth

i've been sitting on this post since yesterday, because i wasn't sure i wanted to write it. after much thought, i've decided that since blogging is so therapeutic to me, that i should just go ahead and power through it. i'm not totally sure what my fingers are going to type, how long this entry may be, or just how emotional or raw it may be, so please bear with me.


those of you who know us personally, know about some of the issues we've been having with andrew. those of you who have come to know me through reading this blog, are about to learn more about the inner dealings of our family and the issues we are currently facing. to all of you, i welcome your thoughts and insight, but please ask that you understand how emotional i am right now, and take that into consideration when posting any comments.

i'm honestly not quite sure where to begin with this. i joke with people, and say "andrew has alway been a challenging child...since 26 weeks in the womb!" that's when i was put on bed rest due to preterm labor. he is an extremely intelligent child who likes things his way and must have control over the situation at all time (hmmm...wonder where he gets these this from!) i tell people that he has "all the traits we love in adults, but look to change in children." he is strong willed, opinionated, smart, clever, etc...i can't find enough words to describe all of the qualities i absolutely LOVE about andrew. but...then come the "other moments." it's almost as if he becomes another child. his facial expression changes, he tightens up and becomes so angry that it scares me. he says things like "i don't love you", "you're not the best mommy", "stupid butt head". his anger becomes physical. he says things like, "i'm going to pinch/hit/kick you" and then proceeds to follow through on these words. for quite a while these things would only manifest toward derek and me. recently, andrew has begun to talk/act this way toward jacob. i have to be quite honest when i tell you that i am scared. i'm at a point where i will not leave andrew alone in a room with jacob, for fear that he will hurt him. i think that may be the first time i've admitted that fact, and i'm terribly saddened to say it, but it's true.
with all of this going on, derek and i decided it was time to reach out for help. i must say that one of the hardest things about being a parent, is to face the fact that there might be something "wrong" with your child. i use this term "wrong" loosely, because again, i know that andrew is a fantastic kid. he just has some things that need to be worked on, so he can learn to control himself. through recommendation. i contact child find in fairfax county a few weeks ago. they told me it could be 5-6 weeks before i would receive a call back. in the meantime, i started researching and pursuing other avenues. last thursday i received a call from child find. they had a cancellation and wanted to know if i could bring andrew in for an evaluation. i called my dad, to watch jacob, and andrew and i went in. my stomach was tied in knots. andrew kept asking where we were going. i said we were going to play (which was sort of the truth...it's an evaluation through play). skip ahead an hour and the evaluator had quite a bit of "data" to work with. much to my surprise, andrew had "acted out" in front of her, by calling me names and being physical toward me. she would present her observations, along with our input, to a committee on tuesday (just yesterday), who would determine whether or not andrew qualified for services provided through the county. she was certain he would not be turned away, based on the things she observed. totally nauseated, i worked up what i would say during this meeting. here i was, making a case that my child was in need of special services to help him learn to control his emotions before it got out of hand and potentially affected someone else or himself. this was the hardest thing i've EVER had to do...and i must say, i've made some pretty difficult presentations! well, after 15 minutes of questions, answers and conversation, the committee decided he was not eligible to receive services, based upon the fact that his behavior was not impacting his/anyone else's education. (as far as we know, these things have never happened at school) i understand their reasoning. i am still mad. i want to find help for my child. i want my child to be happy and not so angry. i want my child to love me. i want my child to know that he is loved. i want my child to love his little brother. i want my chid to know that he is an amazing individual with so much talent. i don't want to walk on pins and needles anymore. i'm tired of always waiting for the other shoe to drop and the explosion that will ensue.
so...we are now searching through the many referrals we have received for therapists, to help andrew....and to help us. we need help. what we're doing isn't working. we need help!

please keep us in your thoughts as we make our way along this journey. derek nailed it on the head yesterday as we left the county meeting, when he said to me "you feel like you've been held under water for so long. finally someone was about to lift their hand off your head and give you a breath of air, but now you've just been pushed down again." this is exactly how i feel...i'm drowning. i need a breath of fresh air.

5 comments:

Rebecca said...

Amy,
First - I want you to know I am praying for you all. I cannot imagine how stressful and confusing this must be. If I could reach you I'd give you a big hug right now.

I want to let you know before I comment further, that I read your post twice - once as a friend, and once as a former teacher. BOTH parts of me want to shake the evaluator for giving you false information/hope by telling you that Andrew would for sure be found eligible...ugh, it's just not good. The friend in me wants to just give you a big hug, let you know I'm thinking of you, and tell you how bad I know this stinks. BUT, the former teacher in me has some questions/advice:
1) Was Andrew's preschool teacher given any type of evaluation to fill out?
2) Was Andrew's preschool teacher invited to attend this meeting?
If the answer to EITHER of the above is NO - request a NEW evaluation. Sadly, sometimes preschool teachers (even really good ones) don't report all the seemingly little things that happen in a day b/c if it's a brief moment in time, it is easily forgotten or not such a big deal. While it is good that he is seemingly always well-behaved at school, it may be good too if he has had the same struggles there - and the teacher could speak to them. In preschool, social interaction is typically considered part of the child's education.

ALSO - does he have these struggles during homework time/time at home when you are doing activities. If yes - then this could provide you w/ an 'arguement' as to how it DOES affect his education.

OK - I'm sorry I've thrown so much at you. Feel free to give me a call if you need anything or would like me to clarify anything (my phone # is on my FB profile if you don't have it still).

Finally, hang in there. You WILL find help and you ARE doing the RIGHT thing. You ARE a GREAT Mommy and Andrew does LOVE you, and he will love you all the more for guiding him through this!

CFox said...

Amy -- I'm so, so sorry to read about this. Life is a balacing act and even little things can throw us in to a tailspin...let alone more significant things.

Call Rene Hackney. ASAP. She has programs for children AND the wisest counsel I've even come across for adults. She "gets" where the kids are coming from and what you're going through. I have yet to find a situation that stumps her. She's busy, but call immediately...and if you don't hear back today, call again and follow up with an email. www.parentingplaygroups.com. Explain that you're in an "emergency" situation and need a consult immediately. I promise that she will identify a way out of this for you...an action plan. She's a PhD and a former early childhood educator. I promise you that she can help.

Many hugs,
Courtney

Unknown said...

Amy,

You are in my prayers. It sounds like we are going through very similar situations.

My oldest, Riley, has always been a challenge for us. She had difficulty from the beginning with feeding, latching on, etc. She always spit up as an infant, and sleeping has always been an issue. When she was just over a year old she started throwing major tantrums, like those I had heard would come with the terrible twos. When she was about 18 months old I began asking myself and those around me if they noticed anything different about Riley. Everyone insisted that she was fine--she was just hitting the terrible-twos early. Well, I spent at least one evening a week balling because I didn't know what to do with my child. My Master's degree in education and all the child development training I had were not helping.

I, too, read "The Strong Willed Child". While I could see some of Riley in the descriptions, I still didn't think it "fit". So, last year I read "The Out of Sync Child". I really felt this more adequately described Riley. Then, we were fortunate enough to be paired with a preschool teacher this year who could shine some light on the behaviors we were seeing. After the first week of school Riley was refusing to go back. So, I called the teacher to see what was going on. Her teacher told me that Riley reminded her of her oldest son, who was diagnosed with Sensory Integration Dysfunction. After talking to her I went to our pediatrician and asked for a referral to an Occupational Therapist. We had an eval and she does indeed have sensory issues.

We've been in OT since October, but Riley's behavior at home continued to get worse. She refused to do any sensory activities that the OT wanted us to do at home. She was hitting, kicking, biting and scratching me on a daily basis. I had to lock myself and our youngest in our bedroom, at times shoving a chair under the door knob b/c Riley would push/kick the door so hard that she would pop the lock!

In the meantime, met a friend through church whose daughter was diagnosed with Autism, but the mom did not believe the diagnosis. So, my friend did a lot of research, read Jenny McCarthy's books, which I highly recommend, and got in touch with a Defeat Autism Now (DAN) doctor. The DAN doctor ordered all these tests, which determined that her child's body was toxic. So, they began a strict elimination diet, which was a huge success.

I heard my friend's story and wanted to start the GFCF diet, but Scott was reluctant. So, I asked our pediatrician if he would order an IgG food sensitivity test(http://www.revolutionhealth.com/stories/view/99a870bcba9c42579a84dcb37ef7ad9a)--this is different from an IgE test, which test for an immediate histamine response. We had the blood drawn in the beginning of April and waited 3 weeks for the results.

***see 2nd post***

Unknown said...

And, to continue...

When the results came back we found that Riley is sensitive to: egg whites, egg yolk, milk, casein (found in dairy products), gluten, peanuts, and mustard. So, we spent loads of $$ at Whole foods and started the diet. We started on Monday and by Saturday Riley was "a different child", in my husband's words. Within the first week I noticed Riley smiling when she would normally have a scowl on her face, the dark circles under her eyes were gone, and she was actually affectionate towards us! We've messed up a few times since starting the diet, and within 2 days we see the old Riley appearing.

I actually just attended an eligibility meeting with our school system for Riley today. She does not qualify for services as a result of her behavioral or sensory issues, but she does have Speech and Language needs. We are not sure if she will get in the Head Start Classroom, but we have the ball rolling.

I know I've said a lot. But, I hope this strikes a chord with you. Know that you are not the only one dealing with this. Here are a few books I would suggest that you read (in all the spare time you have):

-"Kid-Friendly ADHD & Autism Cookbook"--not just a cookbook; it explains about food sensitivities, too
-"Healing the New Childhood Epidemics"Kenneth Bock
-"Healing and Preventing Autism" Jenny McCarthy
-"Louder Than Words" Jenny McCarthy

I am not saying that Andrew has ADHD or Autism. These are books that have helped me and I hope they help you. Please let me know if you have any questions or if I can help you in any way. I will keep you in my prayers.

Sheri

Mommy's Time Out said...

thanks a million for all of the help and suggestions ladies!

rebecca...to answer some of your questions...
the school director was contacted by child find. unfortunately, his teacher was not b/c she's already out for the summer?!?!?! i don't know that either of them were asked to attend the mtg, but i'm not 100% sure about that. i appreciate you mentioning about the possibility of it affecting his education at home...had never thought of it that way. will have to keep eyes and ears open for that!

courtney...i spoke with rene and am in the process of drafting a detailed email to her (upon request) to to help her determine if she'd be a good fit for this issue. thanks for the reminder about rene and pp...always seem to forget about them!

sheri...thank you for your detailed and very informative comment. i really appreciate it! i'm hoping we don't have to go the "diet route", but if we do, i may contact you :)

thanks again fellow mommies!!!

 
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